What J9 Does...

 

The direct services offered through our main program, the ALS Patient, Family, and Caregiver Quality of Life Program, include making home visits, answering basic requests for information and referral, guiding families through intimate dialogue about disease progression, dying and death, coping with a spouse’s death, and other issues related to ALS.

 

We refer ALS patients to specialists such as counselors, attorneys and even contractors, depending on whether or not a family’s home requires construction for wheelchair access.

When providing services to ALS families, we work with each family one-on-one. We get to know them and let them identify their own needs and their own level of desired assistance.

 

Often our time is spent simply being present with families, and listening.

We are active listeners and are sensitive to the many stages of grief involved with facing terminal illness. This sensitivity is the essence of how we serve others.

 

We know that each family member can be at a different stage, which is why we serve the entire network of care for each ALS patient.